Disability Links

Wheelchair Users …The Irish Association for Spina Bifida and Hydrocephalus Home page of the Irish Association for Spina Bifida and Hydrocephalus

• International Federation for Hydrocephalus and Spina Bifida Home page of the International Federation for Hydrocephalus and Spina Bifida
  Scottish Spina Bifida Association Home page of the Scottish Spina Bifida Association
• Jersey Association for Spina Bifida and Hydrocephalus - forums on spina bifida and hydrocephalus
• Spina Bifida Association of America Home page of the Spina Bifida Association of America
• Spina Bifida and Hydrocephalus Association of Canada Home page of the Spina Bifida and Hydrocephalus Association of Canada
• Australian Spina Bifida and HydrocephalusAssociation - a new website for Spina Bifida Awareness Week in Australia
• Queensland Association for People with Spina Bifida or Hydrocephalus
• Arbeitsgemeinschaft Spina Bifida und Hydrocephalus For information in German.
• BOSK Gives information in Dutch.
• The Danish Spina Bifida and Hydrocephalus Assocation (Danish name: Rygmarvsbrokforeningen af 1988)
  The Hydrocephalus Support Association who are in NSW Australia can be emailed on: triplej@accsoft.com.au
• The Spina Bifida and Hydrocephalus Assocation of South Australia
• The Hydrocephalus Foundation Aims to contribute emotional support to people with Hydrocephalus and their family.
• Information in Polish about hydrocephalus and spina bifida.
• Spina Bifida Dernegi (Spina Bifida Association of Turkey).
• Pregnancy and Maternal Hydrocephalus Database
• A moderated discussion emailing list for kids and youths of all ages with spina bifida
• The Spina Bifida and Hydrocephalus Association of Northern Alberta
• The Spina Bifida Association of Quebec
• Jersey Association for Spina Bifida and Hydrocephalus
• Swiss Federation of Spina Bifida and Hydrocephalus
• Ryans Page - Ryan was born at 23 weeks with hydrocephalus.
• Spina Bifida Social Centre This group has been created for people with Spina Bifida, or friends or relatives of people with SB to meet and have fun and regular chats.
• Spina Bifida and Hydrocephalus Association of Ontario
• Brain and Spine Foundation

Other Disabilities.

• Directgov - comprehensive directory of public services for people with disabilities

 National Organisations .

• BBC Ouch Disability Site
• BrailleJail, also known as BRL (Blindness Related Learning) - provider of web-based communication learning tools for visually impaired people, their friends and families
• British Retinitis Pigmentosa Society
• British Wireless for the Blind Fund
• Calibre Cassette Library
• Care and Health - everything you need to know about social care, social work and health
• The Church and Blindness
• Cotis (Confederation of Transcribed Information Services)
• Cue & Review - recording and audio transcription service
• Deafblind UK - the national centre for deafblindness in the UK
• Disability Alliance - publishers of the Disability Rights Handbook
• Disability Information Services - provide a national database of disability information
• Disability World
• Guide Dogs for the Blind Association
• Help the Aged
• Health Information Centre - site provided by the Fibromyalgia Association UK, but including general information on health and wellbeing
• Jobability - the job site for disabled people
• Lions Clubs International - British Isles and Ireland - community service organisation.  Site includes details of Message in a Bottle emergency medical information scheme.
• Look - the national federation of families with visually impaired children
• Macular Disease Society, the
• Micro and Anophthalmic Children’s Society (MACS)
• National Association of Local Societies for Visually Impaired People
• National Library for the Blind
• Nystagmus Network
• Opsis- the national association for the education, training and support of blind and partially sighted people
• Plain English Campaign
• Ready, Willing, Able (RWA) - recruitment bulletin for disabled people
• Remploy - finds jobs for disabled people in major organisations, as well as its own manufacturing and service businesses
• Royal National College for the Blind
• Royal National Institute for the Blind
• Sense - organisation for people who are deafblind or have associated disabilities
• Sortit! - if you’re 11 to 16 years old and have a sight problem, this site is for you.
• Soundaround - audio magazine for blind and partially sighted people
• Soundings - free, impartial monthly information service for anyone in the UK who is blind or partially sighted, available on cassette and on the internet
• SPECS (Specific Eye Conditions)
• Telephone Helplines Association
• Ultralase - laser eye treatment
• Vision 2020 UK - an umbrella group to facilitate greater collaboration between organisations within the UK which focus on visual impairment and operate on a national, regional or international basis.
• Visugate - a one-stop shop for information on visual impairment

 Visually Impaired

• Access all Areas - provides disability access audit services
• Accessible Mail - sign up for a free email account with a variety of accessible interfaces
• Adaptive Innovations
• Blue Badge - disability equality and awareness training
• Braille Cards - personalised braille and voice recordable cards and gifts
• Braille Transcription
• raille and Moon Information from the RNIB
• British Journal of Visual Impairment
• Channel Four Freak Out Site
• Information Pages on Various Conditions from Moorfields Eye Hospital
• Information Pages on Various Conditions from Oxford University Eye Hospital
• Information Pages on Various Conditions from the Royal College of Ophthalmologists
• Nystagmus Information

Hearing Problems

• British Deaf Association
  The BDA is the UK’s largest national organisation run by Deaf people, for Deaf people. They represent the Deaf community.
• Deaf 24/7 - resource for all British Sign Language and deafness related information
•  Deaf Broadcasting Council
  The DBC monitors access to TV and video for deaf, deafened and hard of hearing people.
• DeafPlus
  DeafPlus works to encourage integration and equality between deaf and hearing people in all areas of life.
•  Disability Rights Commission
  The Disability Rights Commission (DRC) is an independent body that works to eliminate discrimination against disabled people and promote equality of opportunity.
• Hearing Concern
  Hearing Concern is a national charity dedicated to improving the quality of life of those who are hard of hearing.
•  Hearing Dogs for Deaf People
  Hearing Dogs for Deaf People is a registered charity that trains dogs to alert severely and profoundly deaf people to sounds they cannot hear such as the alarm clock, baby cry, smoke alarm and many others.
•  Jewish Deaf Association
  The JDA offers support, information and a range of social, cultural and educational programmes for its d/Deaf members, people with all levels of hearing loss, tinnitus sufferers, and hearing people living or working with deaf and hard of hearing people.
• The LINK Centre for Deafened People
  National UK organisation for deafened people that helps them adjust to deafness in everyday living through rehabilitation and life skills programmes, trains health care professionals in acquired deafness, and conducts research that will advance the understanding of this type of deafness.
•  National Association of Deafened People
  The NADP provides information and support for deafened people who have lost all or most of their useful hearing, and for their families and friends, to help enable them to regain their independence and enjoy the best quality of life.
• National Deaf Children’s Society (NDCS)
  NDCS is an organisation of parents, families and carers which exists to support parents in enabling their child to maximise their skills and abilities; and works to facilitate this process by every means possible.
•  Royal Association for Deaf People (RAD)
  RAD strives to meet the individual needs of Deaf children and adults and deafblind people through the provision of services and the use of RAD Centres for Deaf People.
• Royal National Institute for Deaf People (RNID)
  RNID is the largest charity representing the 9 million deaf and hard of hearing people in the UK. They offer a range of services, and provide information and support on all aspects of deafness, hearing loss, and tinnitus.
• Scottish Council on Deafness
  National co-ordinating body for voluntary and statutory organisations which cater for a wide range of needs of Deaf Sign Language users, deafened, deafblind and hard of hearing people, their families, carers and professionals working with them.
• UK Council on Deafness (UKCoD)
  The UK Council on Deafness works with and for deaf organisations in the UK by providing information, advice and support.

National Organisations .

• BBC Ouch Disability Site
• BrailleJail, also known as BRL (Blindness Related Learning) - provider of web-based communication learning tools for visually impaired people, their friends and families
• British Retinitis Pigmentosa Society
• British Wireless for the Blind Fund
• Calibre Cassette Library
• Care and Health - everything you need to know about social care, social work and health
• The Church and Blindness
• Cotis (Confederation of Transcribed Information Services)
• Cue & Review - recording and audio transcription service
• Deafblind UK - the national centre for deafblindness in the UK
• Disability Alliance - publishers of the Disability Rights Handbook
• Disability Information Services - provide a national database of disability information
• Disability World
• Guide Dogs for the Blind Association
• Help the Aged
• Health Information Centre - site provided by the Fibromyalgia Association UK, but including general information on health and wellbeing
• Jobability - the job site for disabled people
• Lions Clubs International - British Isles and Ireland - community service organisation.  Site includes details of Message in a Bottle emergency medical information scheme.
• Look - the national federation of families with visually impaired children
• Macular Disease Society, the
• Micro and Anophthalmic Children’s Society (MACS)
• National Association of Local Societies for Visually Impaired People
• National Library for the Blind
• Nystagmus Network
• Opsis- the national association for the education, training and support of blind and partially sighted people
• Plain English Campaign
• Ready, Willing, Able (RWA) - recruitment bulletin for disabled people
• Remploy - finds jobs for disabled people in major organisations, as well as its own manufacturing and service businesses
• Royal National College for the Blind
• Royal National Institute for the Blind
• Sense - organisation for people who are deafblind or have associated disabilities
• Sortit! - if you’re 11 to 16 years old and have a sight problem, this site is for you.
• Soundaround - audio magazine for blind and partially sighted people
• Soundings - free, impartial monthly information service for anyone in the UK who is blind or partially sighted, available on cassette and on the internet
• SPECS (Specific Eye Conditions)
• Telephone Helplines Association
• Ultralase - laser eye treatment
• Vision 2020 UK - an umbrella group to facilitate greater collaboration between organisations within the UK which focus on visual impairment and operate on a national, regional or international basis.
• Visugate - a one-stop shop for information on visual impairment

Other Disabilities.

• Directgov - comprehensive directory of public services for people with disabilities

Eddy Jackson
info@cyrene.co.uk
www.cyrene.co.uk
www.communincationuk.com
Phone: 0780 9233 688
SkypeIn: 0161 408 6880
Skype: cyrene-consulting Facilitating insights and solutions
for individuals, teams and organisations.

This entry was posted on 08/03/2008 at 01:44 pm and is filed under Fundraising Portals, Fund, charities. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response or trackback from your own site.